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Ashley Ferreira has worked in the non-profit sector for over 10 years, 4 of those years in the rare disease space. She currently serves as one of PicnicHealth's Community Partnership Managers where she works with different advocacy and patient organizations to share about the power of real-world data research and the importance of owning and having access to one's medical records. She currently resides in Southern California with her family and serves as a caregiver for her mother and siblings.
PicnicHealth Blurb: PicnicHealth’s mission is to empower communities to own their health and engage in real-world data research to change the future of rare and chronic diseases. PicnicHealth fundamentally believes that medical record ownership is the right of every patient. We empower individuals by not just giving them access to their medical timeline, but also serving as a bridge that connects patients and researchers to pave the way for medical discovery and advancements. PicnicHealth partners with some of the world’s leading researchers to find new breakthroughs in healthcare. We offer thousands of individuals the opportunity to contribute to meaningful medical research with minimal time and effort. By choosing to share their records, they can make their voices heard and show researchers what managing their conditions truly entails during the course of care.
Video about PicnicHealth: https://picnichealth.wistia.com/medias/prxsj7atjm
Help4HD Specific link: https://picnichealth.link/Help4HD (for every eligible individual who signs up using this link, PicnicHealth will give $100 to Help4HD)